PET Scan tomorrow
April 7, 2014, 6:03 PM
So glad to have gotten a quick appointment for the ever-important PET Scan… going tomorrow 4/8/2014. This test tells us if Rich has cancer cells elsewhere other than the stomach and is an important tool for staging and deciding on treatment options. We’re meeting with the oncologist on Thursday 4/10/14 and he should have the results of the biopsy as well. Fingers crossed that we’ll get our plan of action and be able to move forward with treatments. We’ll keep you posted!
Touched base with Rich’s oncologist today and we’re meeting with him next Thursday. Presumably he’ll have the results of the biopsy by then. Also we pushed to move forward with any other testing we can get out of the way while we wait for the pathology reports. So glad we’ve been given the go ahead to schedule a PET scan. Should know when that will be on Monday. Starting to feel like we’re getting closer to where we need to be.
Those little pressure point seeds from the acupuncturist are working for some extra relief. It’s very short term, but every little bit is welcome.
Within a couple of hours, Richard and Noelle will be here, Nick coming tomorrow. Gearing up for a wonderful afternoon on Saturday with friends and family. It’s time to celebrate those wonderful milestones in life. It’s definitely time to Eat, Drink and be Married!
The second biopsy is now behind us and doctors all seem to agree on the lymphoma diagnosis. Pathology reports may be in in a week to confirm… fingers crossed. This biopsy mapped out the size, location and most importantly, the depth of the tumor using endoscopy and also ultrasound… so instead of a two dimensional image, they get 3D (without the glasses). That will enable the doctors to stage the cancer and plan the mode of attack because they will now know how deep the tumor has gone into the stomach lining. Rich did well even tho’ it all took twice as long as anticipated. He followed up with acupuncture later in the evening and they added “seeds” to his right ear. They are similar to the motion sickness patches in that they are located on the pressure points that affect the stomach. He’s supposed to rub them before and after a meal as well as whenever his stomach is bothering him.
We’ll let you know how this modality works!
So grateful to friends and family! Thanks to Pete for hefting our furniture delivery into the house Thanks to Peggy for a short but sweet visit Thanks to Maria and Danny for getting us to/from the second biopsy Thanks to Arlene for getting the slides to the doctor and Rich to acupuncture (and me around the track for some much needed exercise!) Thanks to LaValle for all the pictures of little Bean which brighten our days and make us smile Thanks to Amy for making me laugh out loud every night – The Dalai Lama would be proud Thanks to our kids for checking in regularly and sending their love Thanks to all of your for caring and stopping by! Can’t wait to see everyone on Saturday… truly a time to celebrate with the people we love for a wonderful event.
Next biopsy to get samples from the lymph nodes set for Wednesday… thanks to Maria for promising to get us there!
After this, it will take two weeks for the results (the waiting game continues) but this should give us the info we need to get the treatment options figured out.
Acupuncture is working for about 36 hours at a stretch to relieve the pain and bloating and enable Rich to go to only half the meds when the treatment wears off. Overall, a huge improvement. Gonna continue for three times a week. Ensure three times a day, iron supplements getting some good color back despite weight loss. Finding a good balance!
Looking forward to seeing Richard and Noelle this coming weekend and pictures of Bean and Boo make us smile every day. We’ll see them at Easter. All good things to look forward to.
Waiting to find out when the next biopsy will be scheduled
Waiting two more weeks after that for the results
Waiting to see what other tests we need to get
Waiting in waiting rooms
Waiting at home
Waiting on the phone
So instead we’re looking forward to all the wonderful events to celebrate with our family and friends.
Or “Seek and ye shall find” Within minutes, our scouting family inundated us with names of acupuncturists and we’re so happy to say that the results were everything we could have wished for. Went to the local guy in town and within 30 minutes, Rich’s pain and bloating were gone. What a relief to see that scowl of discomfort a thing of the past! We’ll continue to go three times a week to keep it all at bay and to work on the other symptoms that are more nuisance than anything else. So many many thanks to all of you from our little community within the “Eye of the Hurricane” who were so quick to respond! Our friendships are priceless. . . . So it took a day and a half for the pain to come back but Rich only needed half the pain med strength as before. Another session with the acupuncturist and the pain is once more gone. The effects should last longer with each session. Impressed with the changes this modality has brought. . . Tomorrow we meet with the next specialist for the next step. Hope we can move forward quickly!
So glad to be able to get back to one of our favorite cabin camping spots with the scouts. Good food, song, stories, games and in the beautiful hills and woods of Westchester. Always a great place to relax by the wood-burning stove while a team of boys cooks and entertain. Tiring but in many ways invigorating as well. Thanks to the boys for a wonderful weekend!
Now we gear up for another consult before the next biopsy to determine the course of treatment. At this point, all signs are leading everyone to believe that it’s a lymphoma again. If one could say that a cancer is a preferable type, this would be the one to want. Hoping to have some answers within the next couple of weeks. If anyone knows of a good acupuncturist, please let us know. Looking for some alternate methods of pain management and acupuncture is highly recommended in a lot of forums.
Edit: Thanks to all who private messaged us info on acupuncturists. Fingers crossed we can get pain relief results that others report for these circumstances.